Fibro Blog #2: becoming a statue

Fibro Blog #2: becoming a statue

She who sits on her backside too often will struggle to move.

Mood:😖
Pain: 8/10
Fatigue: 6/10

Fibromyalgia comes in different shapes and sizes. Some cases are so severe that sufferers faint whilst trying to accomplish the most simple of tasks: meal preparation, getting dressed or doing shopping. For others, it’s a daily challenge missed by most of the people around them as they merely keep their chin up to soldier on.

The struggle is real. A return to full-time work in a job that unrelenting in terms of physical requirements for us spoonies who suffer with chronic pain. 

It is a privilage to be employed somewhere you feel appreciated by the staff and the organisation as well as love the role. Teaching has been nothing but rewarding and joyful, even the challenging aspects. Every day brings a new lesson. It’s worth the extra fatigue. My fridge is crowded with pictures, origami and little notes. 

This week including a lot of hand sewing for a banner in the local  church. Funnily enough, I’ve never sewn logs into a quilt flag hemline before. There were a few injuries. 

In a school, there’s a lot of leaning over desks or kneeling (especially at primary age) which I’m trying to cut out of the daily routine and use the wheelie desk chair instead. 

The kids have given me so much stuff. Drawings, origami, paintings, notes, pipe cleaner bracelets, elastic band bracelets… it’s never ending. I love the appreciation. I never thought I’d be good with children as I never wanted any of my own. It turns out they adore me. In turn, I adore each and every one of them. Despite their sassiness. 

 

There’s loads of running around. After getting new work boots and breaking them in this week, swollen feet came to visit. 

This weekend I’ve slept for 24 hours since Friday, all-inclusive (bed and sofa). The medications I’m on are strong sedatives. Usually, I can handle them, but this week there has been tension on my body and my head feels submerged under cloudy water. Each evening I dozed off before tea. 

It’s odd, becoming used to isolation. There are no bubbles I can share with as a support mechanism. I don’t have the luxury of seeing my family. My father is a NHS paramedic up in the north of Scotland. My mother is a NHS health visitor working with vulnerable babies. My sister is 8 months pregnant. Both my grandparents would be high-risk. With a job like mine, being in contact with 500 students and 50 staff (in spite of bubbles, nothing can be risk-free) alongside their bubbles… I don’t want to spread anything to the ones I love the most. 

Granted, today I’m much more lively. I’ve batch cooked sausage casserole, baking brownies for kindness week at work, cleaned the house and cut my hair. Who needs to pay for a haircut when you got these skills?

 

On a positive note, half term is soon. There will be a week at least, if not 14 days if the government decide to extend it due to COVID-19. Time to recoup, repair and revitalise for the next half term before Christmas. 

I’ve been weening off stronger medications (tramadol, cocodomol, and naproxen) since January. Last week, I used the remaining two tablets of my 50mg tramadol on a bad flare day. I’ve got a number of co-codamol that remain I.C.E. and naproxen for those swellings that just won’t go down. On average, I only take multi-vitamins alongside pain regulators and serotonin boosters.

 

Tomorrow there’s an evening session at the pool. I booked to go. You never know when old Boris Johnson could shut the gyms again. I’ve missed swimming so much. It’s been seven months!

Yoga and tai chi are due to be reincorporated now a routine is established. That way, regardless of lockdown tiers, the essential continuous flow of movement needed to keep stiffening tight joints at may can be met. With or without gyms. Monday to Friday I’m kept on my feet because of the kids. Saturday through Sunday sloth mode activates. 

The best exercises for fibromyalgia:
  1. Yoga
  2. Tai chi
  3. Swimming
  4. Dance
  5. Walking
  6. Pilates
  7. Aerobics 
  8. Cycling

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